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Health · Halfway to a Cure

Strangers Paid to Cure Half His Brain. British Columbia Has Paid Nothing.

A nine-year-old is halfway to a cure for a deadly brain AVM after two Germany treatments paid by strangers, while B.C. says its funding review is still underway.

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Half of it is gone. That is the number to hold first: half of the tangle of abnormal arteries and veins inside nine-year-old Nathan Hepburn's brain — half the malformation, along with its draining veins and the associated aneurysms — has now been closed off. 1 The doctors who did it work in Essen, Germany. The people who paid for it are mostly strangers. 2

Nathan, of North Vancouver, was diagnosed at age five with a large, complex grade-four brain arteriovenous malformation, a rare and life-threatening knot of vessels that can rupture and kill. 1 Grade four is at the severe end of the scale, large and deeply entangled, the kind of lesion where every option carries risk and doing nothing carries more. 30 For four years his family has lived with that arithmetic, and for the past year they have lived with a second burden layered on top of it: finding the money to treat it. 3

The treatment they found is not offered in Canada in the form Nathan needs. 1 It is transvenous embolization, an approach that reaches the malformation from the venous side and shuts it down in stages, which is why a cure takes more than one trip. 39 The work is associated with Dr. René Chapot, head of neuroradiology at Alfried Krupp Hospital in Essen, a world-renowned endovascular specialist credited with more than 120 publications and two device patents. 41 Doctors consulted on Nathan's case called it the best option, and medical professionals across the country recommended it. 3

Key facts

  1. $195,000Raised on GoFundMe by mother 2
  2. 1/2AVM treated after two Germany trips 1
  3. ~$55,000Left earmarked for third treatment 1

The money tells its own story about a health system that did not show up. A GoFundMe campaign titled Help Save Nathan's Life: Specialized Brain Treatment, organized by his mother Natasha Hepburn, a registered nurse and North Vancouver resident, has raised $195,000. 2 Roughly $140,000 of that has gone to the two German treatments completed so far, the latest in August 2026. 1 About $55,000 remains, earmarked toward a third treatment needed to finish the job. 1 Whether that will be enough for the final stage is not clear, and the family has gone public repeatedly to plead for help covering care it cannot otherwise afford. 5

Underneath the medical progress sits a funding fight that has not moved. The B.C. Ministry of Health denied funding in March 2026. 4 The family appealed in June 2026, and the ministry says an administrative review is underway. 8 That is the same response the family says it has heard since June, with no announced timeline and no decision as of the most recent September reporting, even with evidence of progress in front of it. 1 By late August Nathan had completed two rounds of specialized treatment in Germany and was showing significant progress while the appeal still awaited a decision. 3

From diagnosis to halfway

  1. Age 5

    Diagnosed with large grade-four brain AVM

    1
  2. Mar 2026

    Province denies funding for Germany treatment

    4
  3. Jun 2026

    Family appeals denial; review begins

    8
  4. Aug 2026

    Second Germany treatment completed

    3
  5. Sep 2026

    Half AVM treated; appeal still under review

    1

Experimental or proven?

The dispute turns on a single label. The province treats the procedure as experimental and has declined to pay. 1 The family, backed by supporting medical and rare-disease groups and the Official Opposition, calls it proven and argues it should be covered under British Columbia's out-of-country medical services program. 5 That program exists to clarify when the province will fund emergency or elective care outside Canada, and its founding principle is that access to necessary medical care is based on need and not on an individual's ability to pay. 23 The family frames the treatment as proven, a characterization the ministry contests. 30

That reading has drawn public pressure from people who rarely agree on health spending. Adrian Gear, president of the B.C. Nurses Union, sent a letter to the Health Minister advocating funding for Nathan's treatment. 32 Dr. Anna Kindy, the Official Opposition's health critic, called again on June 29 on the B.C. government to fund the out-of-country treatment. 32 The mother at the center of it, Natasha Hepburn, has organized both the fundraising and the appeal, a nurse now working the system from the other side of the bed. 2

What the facts add up to is blunt and should be said plainly. A child with a potentially fatal brain lesion is halfway to a cure because strangers on the internet paid for two trips to Germany, while the government responsible for his care has not committed a dollar and cannot say when it will decide. 1 Progress is real and documented by his treating team, yet it has not changed the funding answer. 30 Need was supposed to decide, not ability to pay, and in this case ability to fundraise decided instead. 23

Known

  • Two Germany treatments done; half the AVM plus draining veins and aneurysms treated. 1
  • $195,000 raised; about $140,000 spent, about $55,000 left for third treatment. 2
  • B.C. denied funding in March 2026; June appeal under administrative review with no decision. 8

Unknown

  • No public timeline or criteria for the review, and no settled ruling on experimental versus proven.
  • Whether the remaining funds will cover the full cost of the third treatment.

Next

  • Whether the ministry issues a funding decision before the family must book and pay for the final stage.
  • Whether the province clarifies how out-of-country need is judged when the care does not exist at home.
As aired 11 lines
  1. A B.C. boy is halfway to a cure — the province hasn't paid a cent.
  2. Nathan Hepburn is nine years old. His brain condition can rupture and kill, and the only specialized treatment that can cure it is in Germany.
  3. The province is reviewing his family's appeal — but there's no decision, no timeline, and the family's money is running out.
  4. The family has raised $195,000. About $140,000 went to the two treatments completed so far. About $55,000 remains — earmarked for the third treatment needed to finish the job.
  5. Transvenous embolization is the technique — a specialized approach that reaches the malformation from the venous side and closes it off in stages. That's why it takes multiple treatments, and why Nathan is only halfway there.
  6. The treatment is not available in Canada in the form Nathan needs. The specialist associated with it is Dr. René Chapot at Alfried Krupp Hospital in Essen, and the doctors consulted on Nathan's case called it the best option.
  7. The treatment is in Essen, Germany — thousands of kilometres from North Vancouver, and paid for by donations.
  8. The family, backed by medical groups and the official opposition, calls the treatment proven. The province calls it experimental and has denied funding — and its review of the family's appeal is still underway.
  9. Nathan's mother, Natasha, a registered nurse, organized the fundraising. The B.C. Nurses Union president, Adrian Gear, wrote to the health minister. The opposition health critic, Dr. Anna Kindy, called again on June 29 for the province to pay.
  10. Nathan was diagnosed at age five with the most serious grade of this rare malformation. In March, the province denied funding. The family appealed in June. In August, Nathan completed his second round of treatment in Germany. Now he's halfway to a cure, and the appeal is still sitting in administrative review.
  11. The ministry says an administrative review is underway — the same response the family has heard since June. There is no announced timeline or outcome. And the roughly $55,000 remaining may not cover the full cost of the third treatment. The classification fight — experimental versus proven — remains unresolved by anyone with authority to settle it.

Sources

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Revision log

  1. r1First published.